FAIR4Health is a project funded by the H2020 Science with and for Society (SwafS-04-2018) call for proposals. It is carried out by 16 partners from 10 different countries and lasts 36 months, active from 1 December 2018 until 30 November 2021.
FAIR4Health encourages the application of FAIR principles in data derived from publicly funded health research initiatives, so that they can be shared and reused within the European Union (EU) health research community, defining an effective EU-wide strategy for the use of FAIR in Health.
The FAIR4Health Final Assembly is held on 24 November in Seville, where the researchers of the FAIR4Health consortium, experts from different fields (health research, data managers, medical informatics, software developers, standards and lawyers) will meet, with the aim of analysing the main outputs and conclusions of the project, including the assessment and the main considerations obtained after the completion of the FAIR4Health clinical demonstrators.
In this clinical demonstration of FAIR4Health, the application of the FAIR principles was carried out (to make data findable, accessible, interoperable and reusable) to facilitate the reuse and sharing of health data, all from a responsible vision. FAIR4Health partners worked on the clinical validation of the technological solutions in terms of computational mechanisms that allow the analysis of health data distributed throughout Europe.
This resulted in the performance of two specific use cases. On the one hand, the identification of multimorbidity patterns and correlation of polypharmacy in the risk of mortality in complex chronic patients. And on the other, the service for early prediction of the risk of 30-day readmission in patients with Chronic obstructive pulmonary disease (COPD).
In this way, health researchers in the European Union have been able to share and reuse their datasets derived from publicly funded research initiatives in a responsible way. FAIR4Helath (https://www.fair4health.eu/) has been the first proposal to translate this initiative to clinical research in Europe and is expected to have a strong impact on research outcomes and health and social care.
As part of the coordination of the project, the correct collaboration and communication between partners of the FAIR4Health consortium has been promoted. This project has been led by the Andalusian Health Service, and made up of the following partners: Instituto Aragonés de Ciencias de la Salud (Spain), Universidad Carlos III de Madrid (Spain), Atos Spain SA (Spain), University for Health Sciences, Medical Informatics and Technology (Austria), HL7 Foundation (Belgium), Institut für Medizinische Informatik, Statistik und Epidemiologie - Universität Leipzig KöR (Germany), Academic Medical Center of University of Amsterdam (Netherlands), Université de Genève (Switzerland), Peter L. Reichertz Institute for Medical Informatics, University of Braunschweig (Germany), Università Cattolica del Sacro Cuore (Italy), European Federation of Medical Informatics (Switzerland), Digital Curation Centre from University of Edinburgh (United Kingdom), Garrigues (Spain), Software Research and Development Consultancy (Turkey), University of Porto (Portugal), and the Institute of Pulmonary Diseases of Vojvodine (Serbia).
The FAIR4Health project has a website https://www.fair4health.eu/ and social media profiles @Fair4Health where anyone can consult all the information on the project.
FAIR4Health is funded by the European Union's Horizon 2020 research and innovation programme under Grant Agreement number 824666.